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Life Lately

After an insanely busy winter, I am back on the blog wagon… I suppose it’s time for a catch up.

Thing 2 continued his journey down the neurology rabbit hole. Last fall, we sought a second opinion on suspected absence seizures, and proceeded with an EEG, head MRI (revealing a Chiari malformation restricting the flow of cerebral spinal fluid), then a follow-up MRI on his spine to evaluate for any tears or syrinx. The spinal MRI was clear, and the neurosurgeon suggested repeating the scans yearly. Our coinsurance for the spinal MRI was $2,200, so I doubt yearly repeats are financially feasible, unless by some miracle Thing 2 qualifies for Medicaid. So far our county Department of Social Services has refused to screen Thing 2 for waiver services. Outright refused, which I am pretty sure is illegal. Typical Virginia. Meanwhile, Thing 2 has been pushing on his cheeks and acting like his face is in pain. Our pediatrician noticed his 6-year molars (the first permanent molars we get) were erupting. We gave him Advil, and that seemed to help. At the dentist last week, Thing 2 was amazingly cooperative, and it must have been divine intervention. Our dentist found an abscess in a baby molar, which must be horribly painful. That is why he’s pushing on his cheek, and that tooth will be pulled next week. This is the point I find myself frustrated and furious with autism and the lack of communication that goes with it. Thing 2 was unable to tell us he was in pain, and that is not acceptable. And unfair. Hopefully his mood will improve once that tooth is pulled, because no one in this family is allowed to take a knee! This month Thing 2 also returns to the neurologist and gets registered for Kindergarten.

Thing 1, on the other hand, is doing incredibly well–in school and ABA sessions. Thing 1 is in second grade, and by Christmas mastered Kindergarten and first grade sight words. His behavior therapist is working on generalizing that skill, meaning recognizing and reading those sight words in formats other than a flashcard. I left my school laptop at home one morning and came home during my planning block to pick it up. I walked in on an ABA session, and Thing 1 was reading. READING. I didn’t want to leave. Besides going into a general education second grade classroom for literacy circles, starting in January he was included in general education math, too. I love it when the stars finally align and Thing 1 makes such huge strides… Sometimes it is difficult to see a light at the end of the tunnel, but hard work always pays off. Thing 1 has been working his butt off.

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Thing 3 is mere days away from his second birthday. He was completely delightful and easygoing until he hit 18 months. That’s when he decided to jump start the Terrible Two’s. The kid is so stubborn! He wants to do everything himself, his way, on his own time. He is also not saying a single word, and every time he stands on his toes or walks in some repetitive pattern around the room, I feel a lump my stomach. I had to make the call yet again and ask for an autism evaluation, which will be another two months away. On that note, I am donating our brains to science. We have not seen a geneticist since Thing 1 was diagnosed in 2010, but there must be something behind the way our genes are mixing and mingling to produce potentially three kids on the spectrum. Hopefully by joining the Autism BrainNet, our noggins can help solve the mystery for other families. Besides, it’s not like any of us will need our brains when we’re six feet under.

I’m almost halfway done with the national board certification process. I submitted Component 2–a portfolio showcasing how I teach writing and differentiate instruction. I had to analyze three writing assignments for that component, and it made me grateful to not be a Language Arts teacher. Oy…the writing! I take a test (multiple-choice and short answer) in June, and then I’ll pick up the process again this fall with two more components to submit. I’m also ready to kick this group of seventh graders to the curb. Despite the lethal mix of laziness, immaturity, and psycho parents this year, I still love my job most days…until Pi Day comes around, and I take one in the face.

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It’s all for a good cause.

The house is in shambles since my husband demolished our master bathroom. It will look amazing when finished, but in the meantime, there’s a bathtub and two toilets hanging out in the garage, sawdust scattered, and a shop-vac by my bedside.

There’s a light at the end of the tunnel, right?

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