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Another morning spent with a neurologist…another waste of time.
When we saw a sharp spike in Thing 1’s self-injurious behavior (SIB’s) last fall, our pediatrician recommended he be evaluated for seizures. These episodes with Thing 1 were frightening because they started with a zoned-out blank stare, then his eyes dilated and he repetitively hit himself in the shoulders, sides, and head. A couple neurology visits, blood draws, one EEG, and one MRI later, there was no evidence of seizure activity. Around the same time, we consulted with a developmental pediatrician who prescribed a strong probiotic and several other supplements. Low and behold, after getting his gut cleaned up, Thing 1 was a calmer child. There’s a lot of evidence to suggest autism symptoms are exacerbated by gastrointestinal problems, and I believe this was the problem for Thing 1.
With Thing 2’s increasingly erratic behavior and lack of sleep, our pediatrician again sent us for a neurology consult. What is neurology exactly? These doctors deal with nerves and the nervous system, including the brain, spinal cord, and our sensory receptors. Today we saw a different pediatric neurologist (not the doctor who treated Thing 1), one with an added interest in sleep disorders. I woke up thinking, “YES! Today is the day for answers and a plan!”
Not so much…
Within the first 10 minutes, this neurologist was talking in circles. I detailed our background, what led to this appointment, and he appeared confused. Why were we seeing a neurologist and not a developmental pediatrician? Good question, doc. Maybe because there is a 7-month wait list for appointments, and I cannot get our regular pediatrician to pull any strings in that department. So round and round we went. I explained that Thing 2 is generally a high-strung, excitable, easily agitated kid; that he takes power-naps between 10:00 and midnight; and that when he is asleep, he is still constantly moving and fidgeting. This neurologist’s response: “There is not a medicine to help his problem.” Then the doctor drew me a picture of a clock and explained how the circadian rhythm works. Our prescription–keep Thing 2 awake until midnight, power-nap from midnight until 2:00 a.m., and eventually sleep deprive him until he cracks. I felt like a broken record, but I kept saying that sleep was symptomatic of a larger problem for Thing 2, whether that be anxiety, or neurological misfires, or whatever. But he kept drawing me more pictures of clocks. Not that I was begging for drugs, but I couldn’t get anything out of this guy. Complete blood count, metabolic panel, thyroid check…nothing. An hour later, Thing 2 and I left the office, I looked down at him and asked, “What the hell just happened in there?” Thing 2 answered with, “Doughnut, please.”
Another speciality visit, another $50 copay, and no answers.
I guess we’ll go for the sleep deprivation and see who cracks first: us or him.